2017 Sweat it Out 5k
Saturday, June 3, 2017, 07:00AM Start Time
Old Woodlands Park
Columbia, SC 29209
June 3, 2017 is the third annual Sweat It Out 5k! The turnout last year was so amazing and the feedback received was so positive! A total of 155 runners and $6,100 donated to National Foundation of Ectodermal Dysplasia. It only makes sense to do it again!
The 5k will take place on June 3rd in the Old Woodlands Park. As runners from last year can validate, there was plenty of sweating going on. How many of us take sweating for granted? Most people do until they meet someone who can't.
Hypohydriotic Ectodermal Dysplasia is a rare inherited genetic disorder that affect 1 in 17,000 individuals worldwide. It is a multisystem disorder that typically affects the hair, teeth, nails, sweat glands, and skin. The primary feature of HED is lack of or diminished sweating: hypohydrosis. The National Foundation of Ectodermal Dysplasia (NFED) is a nonprofit organization that helps and supports families affected by HED. They have been so helpful to our family since Nicholas’ diagnosis. So many questions and concerns; NFED was there for us, supporting us through the initial phase of being diagnosed. Their mission is to empower and connect people touched by HED through education, research, and support. Their vision is to be a recognized leader among health related nonprofit organizations and will be known for providing comprehensive services with loving care for individuals affected by HED. NFED will help individuals and families benefit from early diagnosis care, and will continue to be there throughout their lives. Ultimately, a cure will be found and NFED will be the force behind this cure!
This race has two goals: Raising awareness and raising funds. To know about and to understand HED will empower those affected.
They will have a voice…your voice. The funds raised will allow the NFED to continue their amazing work and help them to fulfill their mission.